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Elist November 19, 2008

Blue Ridge Chapter Weekly E-list Update

November 19, 2008

Contents: 

Programs:

1.  Holiday Dinners in Henry County and the Winchester/Front Royal area

2.  Couples workshop in Lynchburg

3. Spirituality Teleconference

4. Join the Blue Ridge Chapter at Afternoon Ballroom

5. Save the Date: MS Action Day

Research:

6.  MS Trial Alert: Large Study of Oral Laquinimod Seeking People with Relapsing-Remitting MS

 

Programs:   

1.  Holiday Dinners in Henry County and the Winchester/Front Royal area

Join the Blue Ridge Chapter for a fun holiday dinner in your community!  Bring your family, friends, and loved ones to this awesome opportunity to celebrate the season. 

December 5, 2008 in Collinsville

Quality-Dutch Inn at 6pm

$5 per person

December 5, 2008 in Strasburg

Hotel Strasburg at 6:30pm

$10 per person

RSVP by December 1, 2008 at 1-800-344-4867 or email vab@nmss.org.  Come and join the fun!

 

2.  Couples workshop in Lynchburg

 Save the Date...for a very special opportunity in Lynchburg.  On December 5-6, 2008, the Blue Ridge Chapter will be hosting a professionally led full-day Couples Workshop.

For more details, click here.

 

3. Spirituality Teleconference

On December 9, 2008 at 7:30 pm, you will have the opportunity to participate in a teleconference on Spirituality. 

Research supports the idea that people heal faster when they are at peace, relaxed, and connected to a power greater than the body and mind alone.  Spirituality can provide that connection.  Enjoy hearing John Jordan, MSW, LCSW, Vice President of Clinical Services at United Family Services, and gain tools to better understand your spirituality and grow comfortable with your own humanity. 

This teleconference is free and open to all who are interested.  Please register by December 2 by calling 1-800-344-4867 or email vab@nmss.org. 

 

4. Join the Blue Ridge Chapter at Afternoon Ballroom

 You are invited to join a ballroom dancing class specifically designed for people with Multiple Sclerosis and Parkinson’s disease.  This class will be crafted to meet your unique needs.   Join the fun each Thursday at 2 pm at Terry Dean’s Ballroom Dance Studio, located at 2123 Berkmar Drive in Charlottesville. 

If you have questions about the class, call the studio at (434) 977-3327.  Bring your special partner or come alone; dance partners are provided.  Each class is $10 per person.  The Blue Ridge Chapter will share in the cost of these classes through our Wellness Scholarship program.  The scholarships are not need based and everyone with MS is welcome to apply.  Call 1(800) 344-4867 or email vab@nmss.org for more information about our Wellness Scholarships for this or other exercise or recreation programs.   

 

5. Save the Date: MS Action Day 

On January 25-26, 2009, Blue Ridge Chapter volunteers and staff will travel to Richmond for MS Action Day, a time to speak with your representatives about meaningful and important legislative issues.  If you would like to learn more about how you can participate in MS Action Day or the advocacy efforts of the Society, email Darren Ball at darren.ball@nmss.org. 

 

Research:

6.  MS Trial Alert: Large Study of Oral Laquinimod Seeking People with Relapsing-Remitting MS   

Summary: Investigators at sites worldwide are seeking volunteers for a clinical trial studying oral laquinimod (Teva Pharmaceuticals) in comparison with inactive placebo or interferon beta-1a (Avonex, Biogen Idec) in 1200 people with relapsing-remitting MS (RR MS, a course of MS characterized by clearly defined flare-ups followed by complete or partial remissions). The study is funded by Teva Neuroscience.

Rationale: Multiple sclerosis occurs when the immune system mistakenly attacks nerve fiber-insulating myelin and other brain and spinal cord tissues. Laquinimod is believed to affect this attack. Oral laquinimod (Teva Pharmaceutical Industries) reduced disease activity by 40.4% compared with inactive placebo in a phase 2 study of 306 people with relapsing-remitting MS. (Lancet 2008; 371: 208592) A phase 3 study of laquinimod versus inactive placebo is currently underway in 1000 people with relapsing-remitting MS.

Eligibility and Details: Participants must be between 18 and 55 years of age, with a diagnosis of relapsing-remitting MS, and at least one MS relapse in the 12 months before screening; or two relapses in the 24 months before screening; or one relapse within 24 months and one active lesion observed on MRI. Exclusion criteria include previous use of interferon beta, among other drugs. Please use the contact information below to find out about further inclusion/exclusion criteria.

Participants will be randomly assigned to receive either laquinimod 0.6 mg (one capsule daily), inactive placebo, or Avonex 30 mcg/wk for 24 months. Subjects completing this “core” study will be offered the opportunity to enroll in an open-label (meaning no placebo group) extension study in which all subjects will take the study drug.

The primary goal of the study is to determine the effect of laquinimod on the number of relapses during the 24-month core study. Secondary goals include impacts on disease activity as observed on MRI scans and accumulation of disability.

Contact: To learn more about the enrollment criteria for this study, and to find out if you are eligible to participate, please visit http://www.tevaclinicaltrials.com/, or call 1-800-840-5601. Sites are enrolling in the cities listed below.

Alabama - Northport

Arizona Phoenix, Tucson

California Pasadena, Sacramento

Florida Orlando, Sarasota

Georgia Atlanta

Illinois Peoria,

Indiana Indianapolis

Kansas - Lenexa

Louisiana New Orleans, Shreveport

Maryland - Baltimore

Michigan Grand Rapids

Nevada Las Vegas

New Hampshire Lebanon

New York Albany, Amherst, Cedarhurst

North Carolina Raleigh, Winston-Salem

Oregon Portland

Ohio Akron, Cleveland, Columbus

Puerto Rico - Guaynabo

Texas San Antonio

Tennessee - Nashville

Virginia Richmond, Roanoke

Washington Tacoma

For information about sites outside of the U.S., visit the study listing on ClinicalTrials.gov.

Click here to learn more about issues to think about when considering enrolling in a clinical trial.

-- Research and Clinical Programs Department

 

Click here to view the very latest research news on the National MS Society website. 

  The Blue Ridge Chapter of the National Multiple Sclerosis Society is proud to be a source of information about multiple sclerosis.  Our comments are based on professional advice, published information, and expert opinion, but do not represent therapeutic recommendation or prescription.  For specific information and advice, consult your qualified physician.

The Blue Ridge Chapter of the National Multiple Sclerosis Society does not endorse products, services, or manufacturers.  Such names appear here solely because they are considered valuable information.  The chapter assumes no liability whatsoever for the contents or use of any product or service mentioned.